YIPPPEEE!!! No hospital for this chicka today! 😀
I was expecting to be admitted to the hospital today by my doctor in Boston for IV prednisone. But, he was nice enough to set me up with IV home infusions so I can be in the comfort of my own home. He is truly amazing! I am so thankful to have a doctor who is willing to work with other people to get me the best care possible. Him and my primary care doctor (who is also amazing) have been back and forth on the phone trying to figure this out for me. I cannot even contain my excitement that I will be able to be doing this at home. This is the first time I have ever done this and I am praying it works.
Today I felt pretty good, besides the morning. But, I always have bad mornings, that is my worst time of day with this disease. Got out of the house for a little while and ran some errands. Oh! and I finally found something to help me sleep! Not my favorite choice of going to another pill to treat this but the prednisone was making it unbearable. My doctor prescribed me Ambien. I was very hesitant to take it because when my mom had her thyroid out because of thyroid cancer she was too deprived of sleep and put on this medicine. But… it made her CRAAZY! Like homicidal crazy. We laugh about it now but it was very scary! Medicine does strange things to you that are beyond your control. She noticed it after one dose and thankfully stopped it! I took my first pill last night and it worked wonderful! I haven’t had any side affects yet, fingers crossed.
I start my IV infusions tomorrow morning. A nurse will come to my house, put in my IV line and mix up my meds then she will teach me how to work it. I’ve watched and had so many IVs taken in and out I could probably do it with my eyes closed. Although I have never administered my own drugs so this should be interesting. I’m glad my doctor trusts me enough to do this! But anyways, she will teach me this and I will receive two half hour sessions of IV prednisone via IV. When I’m not hooked up to the medication I am able to do what I want! Well.. mostly. I will still have the line in my arm but I have so much more flexibility than being in the hospital. This is new for me and I’m so excited! I will keep updating you on this whole process.
I am just happy I’ll be in the good company of my pups! I haven’t talked much about them but they are a godsend to me. I have three. Two Maltese: Zoey and Sugar and a golden retriever: Jackson. They are always by my side when I’m sick. It’s actually pretty amazing. And it’s amazing what the comfort of a dog can do. It’s a sort of bond that you cannot get with another person. Despite my illness I am pretty much obsessed with animals.. dogs especially. I couldn’t live without one. They’re always there for you. When I have my breakdowns about being sick and tired of being sick and tired I ALWAYS have a furry friend next to me licking my tears away. Jack even keeps me company when I have to sit on the toilet for hours at a time! They never fail to put a smile on my face. But then again, looking at these faces, how could it not make you smile! 🙂